Monday, July 29, 2013


All in for Duchenne

Dinner / Reverse Raffle to Benefit
Duchenne Muscular Dystrophy

When: Saturday, September 7, 2013 6pm-11pm
Where: Sylvania Tam-O-Shanter
Raffle Tickets are being sold at $100.00 per couple
Ticket price includes the following:


Admission to the event
Dinner by Jeds Barbeque and Brew
Drinks for the Night  (Soda, Beer & Wine)
Music

T-Shirt from the Non-Profit Organizations we are sponsoring
(Limited, first come first serve)
Chance to win $4,000, $1,000 & $500.00 in the Reverse Raffle


*While attending the night, please take a chance at the “Texas Hold Em” table,
Black Jack table or the other games that we will be going on that night.*
Auction Items / Raffle Items
 100% of All Proceeds will go towards
Duchenne Muscular Dystrophy Research and Trials

For further Information contact Tammy Henegar at 419-260-2687 / thenegar2000@hotmail.com

Tuesday, August 28, 2012

"Coach to Cure MD: for Parent Project Muscular D\ystrophy

"Okay Clay Eagle And Whitmer Panther Fans!!!!"


We are set to have the 2012 Coach to Cure MD event again this year at Eagle Stadium.
It is Friday, Septemeber 28th. If you are interested in volunteering to help us out this year, please contact me. This is a great event that we were involved in last year for Parent Project Muscular Dystrophy. They are one of the leading forces out there to help find a cure for Duchenne. More details to come soon... For now, we are looking for donations for our raffles and help in getting the word out to the communities to make this year a HUGE success and one more step forward to finding a cure for our boys. 

Watch this video attached below to learn more on Coach to Cure MD.



http://www.youtube.com/watch?v=6XPvmYi43T4&feature=share&list=UU1YVq-XQ8FA3-ONbi7QScHg
                                                                        

ONE DAY, TWO TEAMS,
YOUR VOICE,
CURE DUCHENNE

PLEASE SUPPORT THE CLAY EAGLES IN
“COACH TO CURE MD”
GAME DAY: FRIDAY, SEPTEMBER 28th
GAME TIME: 7:00PM
 T-shirts, Arm Band Sales,
Raffle Items 

Coach To Cure MD is a partnership between the American Football Coaches Association (AFCA), a professional organization for over 10,000 college football coaches and staff, and Parent Project Muscular Dystrophy (PPMD), the largest national charity devoted exclusively to Duchenne muscular dystrophy.

In 2008 the AFCA adopted PPMD’s Coach To Cure MD program as one of their charity efforts. One reason the AFCA was drawn to Coach To Cure MD was because of the unique parallels between Duchenne, a disorder which robs young men of precious muscle strength and college football, a game where young men are at the peak of their muscle strength.

GOALS OF COACH FOR THE CURE ARE SIMPLE:
1.    Raise national awareness of the disorder
2.    Raise money to fund research for a cure
Learn more about Coach to Cure MD at http://coachtocuremd.org/

ABOUT PARENT PROJECT MUSCULAR DYSTROPHY
Parent Project Muscular Dystrophy (PPMD) is the largest nonprofit organization in the United States focused entirely on Duchenne muscular dystrophy.
Since 1994, PPMD has improved the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne through research, advocacy, education, and compassion. Because of our efforts, families affected by Duchenne have better access to state-of-the-art care information, research is moving forward at an accelerated pace, and legislation now exists funding Duchenne research and outreach programs.
We take a comprehensive approach in the fight against Duchenne—funding research, raising awareness, promoting advocacy, connecting the community, and broadening treatment options. Only this comprehensive approach will lead to the day that 100% of those diagnosed can turn to a treatment that will lead to the end of Duchenne muscular dystrophy.
Learn more at ParentProjectMD.org.






Friday, August 17, 2012

Lia Sophia for Braedans Bridge


Abby Teet and I are working for a FUN, EASY, and FASHIONABLE way to raise money to End Duchenne in honor of Braedan's Brdige.

I will be hosting a Lia Sophia showcase at my house Thursday September 20th at 6:00 pm. All profit from the party will be donated right to Braedan's Bridge. Thanks Abby Teet!!! Not only will you be able to get something stunning for yourself, but you will be helping incredible little boys as well!

For those of you who are not able to make it to the party, but would still like to support the cause,
here if how you can do it:

www.liasophia.com/abbyteet
click on browse jewelry
enter hostess: Tammy Henegar
and shop away!

There is also an incredible special as well, so feel free to SAVE money! :)
It is the PICK 6 SPECIAL: When you pick out 6 items, you can take ANY 4 of them and make the 50% off! So, be a smart shopper and make your highest priced items your half off items!!!

If you would like a personal catalog, please message me with your name, number, and address and I will get one in the mail to you asap!  E-mail is abbyteet11@yahoo.com, or find me on Facebook under Braedans Bridge.

LETS RAISE SOME MONEY LADIES and Cure Duchenne!!!!

Jett Riders roll in to visit


The Jett Riders, organized by The Jett Foundation ride across the country to raise awareness and funds for Duchenne Muscular Dystrophy.  In this years journey, we had the opportunity to host them at our house for lunch, cooling down in our pond and to just relax.  They swam, played King of the Raft, played baseball, and ate.  That evening we joined them in Sandusky for some fun at Goofy Golf, Putt Putting and Go-Karting. So much fun!!!!  They plan on coming back again next year and camping out for the night in our back yard. They hope to meet more families on our area as well.  Read the article below from our local press:



Cure Duchenne Family of the Month August

The Henegar Family

Chelsea, Scott, Bradean and Tammy Henegar (left to right)
Chelsea, Scott, Braedan and Tammy Henegar (left to right).
In many ways Braedan Henegar, 6, is a typical first-grade boy. He loves the outdoors, animals and enjoys playing with his family’s four dogs. He is a Sprint Car Racing fan and enjoys going to the track to watch. Braedan is active and likes to swim, ride his bike and play t-ball.
What isn’t so typical is that when Braedan turned 5 he was diagnosed with Duchenne. Now his parents have to balance his natural activeness with a new daily routine that involves living with the disease.
“I want him to be able to be an active boy and experience everything boys like to do, but we always have to be aware of what he is doing and think about if he is being too harsh on his muscles,” said Tammy Henegar, Braedan’s mom. “It is a huge struggle to have the right balance.”
Braedan’s routine has changed. It now includes daily stretches and physical and occupational therapy. The Henegar’s watch what Breadan eats and limit his salt and sugar intake. Rather than going to the neighborhood school he goes to a school that is 15 miles away because it is all on one level.
Braedan knows that his muscles are different than other children. He tires out sooner and his muscles ache. He is starting to ask more questions.
“Right now Braedan is doing really well,” said Henegar. “We will continue to stay up with the latest research and keep him as mobile as long as possible until there is a cure.”
Henegar has been a big supporter of CureDuchenne and other Duchenne organizations. In April, she hosted a parent outreach session for more than 40 people in Perrysburg, Ohio. In July, Braedan participated in the Wooden Bat Tournament in Dayton that benefited CureDuchenne.
Braedan is a huge Clay Matthews fan, even before finding out the connection with CureDuchenne. Matthews, a linebacker for the Green Bay Packers, is a CureDuchenne spokesperson.
“Even though we are taking this journey through life that we never thought we would be traveling down, it is bitter sweet,” said Henegar. “We are having new experiences and are meeting wonderful people such as everyone at CureDuchenne, and all the other families we have met and became close too. We’ll continue to work tirelessly to help raise awareness and funds to find a cure.”